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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohn's.When my disease was in remission. I don't think my husband realized how bad it could get, but he has stood by me. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and is able to walk because of them. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Tuesday, September 30, 2014

A Typical Week in my Life?

This last week has been a week of contemplation, ups, and downs.
 
Last Sunday, in church, all I could do is think of my mom and how I missed her.  We used to celebrate her birthday on the 21st, until she got her Social Security.  She had to get her birth certificate and discovered she was actually born on the 22nd!  Her parents had always told her the 21st!  Mom would have been 95.  The morning in church was spent crying.  I just could not stop.
 
In the afternoon we went to my great, great nephew's 1st birthday party.
 

Do you think he liked his cake?  No tears here!  Was so nice to be surrounded by family and little ones.
 
I bought a hot pink suitcase off of a buy and sell group.  Now I will see my suitcase coming down the turn style right away at the airport!
 
I also found a top at the thrift store and a necklace to go with it.  The necklace cost more than the top.  When I have the sleeves hemmed, I will model it for you!
 
It was doctor week.  I saw the kidney doctor and my kidney disease is stable.  I saw the podiatrist for my nail fungus...waiting for my toenail to grow!  I also saw the periodontist.  My insurance covered some of my last bill, so I didn't have to pay this time!
 
Saturday evening my husband took us out to dinner.  We asked my sister to join us.  Jim raved about the Texas Roadhouse and how good the steaks were.  Ours were great, and wouldn't you know it, after all the hype, my sister's steak was really tough and full of cords.  She got a new steak and a good discount off of her meal.  She said she won't go back though.  It is really noisy there!
 
I have been reading Heaven and the Afterlife by James Garlow and Keith Wall.  It just made me think of my mom all over again and I started grieving and crying.  After much talk with my sister, my bff, and God, (I should have talked to Him first), I think I have finally come to grips that Mom is in a mansion, with no more sorrow and no more pain, surrounded by her loved ones and all the companies of Heaven!
 
 
 


Monday, September 22, 2014

Ethnic Fest: Cloudy but the Rain Held Off for a Bit

Saturday my bff and I went to Ethnic Fest.  It is probably the biggest festival in this little city that draws people from all over the state!
 
First of all there is the food court (you know where my priorities lie).  In the past there was more variety.  This year it was mostly Asian, one Mexican, one Italian, pulled pork and American.  I missed the fried smelt, the gyros, chili, walking tacos, and the Australian food truck this year.  Oh well!  Maybe they will be back next year?  The German fare was down the road at the beer garden.
 
The entertainment was great! 
 
 
Native American

Hawaiian

Polynesian

 


 
I loved all the costumes!
Czech Band
 


My Godson making a memory!  I always wanted to do this, but told him if he would do it, I would buy the tickets!

There was many crafts but not the variety of the past.  Some jewelry, very much Asian, some Peruvian, some silk flowers, wall and holiday d├ęcor.  I bought a winter headband and a little monkey for my great, great nephew's birthday!

Sunday, September 21, 2014

Today I Wanted to be with Jesus.

This morning I had a meltdown at church.  I went to the rest room, collected myself, and then went back in and cried some more.  Maybe it was all the singing about taking my last breath and being with the Lord and all, but it made me think of my mom.
 
Tomorrow would have been her 95th birthday.  For years she celebrated it on the 21st since she was told that was the date when she was born.  However, when she needed to apply for Social Security, she had to get her birth certificate and have it translated to English.  She was born on the 22nd!  Seems for 60 some years she had the wrong date!  Back in 1919, mom was born at home and was delivered slightly after midnight.
It is a cute story.
 
After church, the pastor's wife (and my friend) came up to me to see what was wrong.
We talked.  I told her besides grieving, I often wished that I had a disease that I could just get some treatment for or have an operation and be done with it.  But noooooooooo!
This is how I am and will most likely always be.  It is not enough that I have had to battle Crohn's Disease, have had intensive surgery, have stage IV  Kidney Disease.  I suffer with depression and that gets pretty darn sickening!  I am sick of going back and forth with medication.  I just want to be normal.
 
It seems we all have something and must suffer as long as we live in this world.
Today I wanted to be with Jesus.


Wednesday, September 17, 2014

Would Rather Talk in Person!

I am not a good writer.  I am more of a talker.  I got into trouble on Facebook again (stupid me).
I commented on a friend's post, but she took it the wrong way and got defensive. I got hurt feelings
from her response.  We talked things out and I think we finally came to a resolution as we were talking about her kids when we were done chatting.

I am not going to comment (much) on Facebook anymore.... better to just post inspirational messages, jokes and photos.

So much can be  misinterpreted online. Unfortunately, it is the way of the world!  Chatting, email, texting....
Arghhhh!

The movie yesterday was so good!  I really enjoyed it.  PLUS, Tuesday is seniors day and you get in for $5 and it was free popcorn Tuesday!

Hubby is home today and then goes out of town for a few days.  I will have to make a good meal.   I hate it when it is just my son and I at home.  I never know what to make for dinner!

Ethnic Fest is this Saturday.  It is supposed to rain.  I hope the meteorologist is wrong!

Monday, September 15, 2014

Monday Muses and Moans

Today was just a bad day.  Hubby overslept.  One  nephew got grumpy with me.  
My nieces and nephews need prayers and I can't help but get heartbroken over their circumstances.  I love them as though they were my own children. ( Thank God my son and hubby aren't giving me any heartache.)

Had a headache most of the day (see above).  

Another friend's Facebook remark hurt my feelings.  I don't know if I am misunderstood or not, but I think I should give up Facebook but I never do.
  It just causes so much drama and hurt.

It hurts my feelings when no one comments on my blog.  Still, I keep plugging away.  (It's therapy)

Was it the gloom and the rain today?

So, ON THE BRIGHT SIDE:  My son helped me with dinner and clearing the table.  (He's learning...
My husband just stayed out of my way).

Tomorrow I am going to go see The One Hundred  Foot Journey starring Helen Mirren.  I am looking forward to that.



Note to Self:  Think twice about going to a baseball game on a school bus.  My sister and I went to see the Milwaukee Brewers yesterday with a church group.  A nice bag lunch was provided, but boy was my butt sore from that bouncy bus!  (The Brewers won!)


Sunday, September 14, 2014

Sunday Snippets

Some of my crafting friends and I play a little game.  It is word bingo.
I am calling this month's game and have chosen words pertinent to my journey in life.
*****************


Interstitial Cystitis:  Another one of my autoimmune disorders, characterized by pin sized ulcerations of the bladder, bleeding, pelvic pain (like getting kicked in the crotch).  Before I was diagnosed, they kept treating me for a UTI and the symptoms would persist.  I am on medication to prevent flare-ups now.

Adoption:  Our son is adopted.  We had trouble finding an agency.  Seemed we had to be either both be Lutheran or both Catholic.  There are no agencies to the east, just the lake.  We couldn't afford a private adoption, so we applied through the state where religion and income are not a factor.  This was 1981.  The state selected through a lottery system and our name was pulled!  Woo hoo!  Then later, the state discontinued their healthy infant adoption program, so they placed the applicants with other agencies to be studied according to state guidelines.  The agency would study three of their applicants before going on to a state applicant.  That process took years.  We were finally placed with Children's Service Society in Milwaukee in 84.  We had to attend classes in Milwaukee (a two hour drive) every week for five weeks.  We each also had to write a 20 page autobiography, followed by a personal interview.  Our social worker argued our case as I was almost turned down because of my history of Crohn's Disease!  We got Danny on December 18, 1985.  He was 12 1/2 lbs because he was a preemie.  Later we discovered he had cerebral palsy and were offered the option to "trade him in."  NO!
Anyway, wonder if all new parents should go through this process!

18.  University Hospital of Wisconsin:  I spent three lovely summers there with Crohn's Disease from 1971 - 73.  The old hospital had a beautiful lobby, but that is where it ended.  Rooms were not air conditioned.  Many died during a heat wave.  Would also get all those nasty baby flies by my hospital bed.  They were all over my pillow and this one dorky nurse just swatted the flies on my pillow.   I didn't have a bath or shower.  My cousin came and cleaned the tub down the hall so I could have a bath.  I met many other young adults with various illnesses and formed friendships that were separated by death.  The medical care was the best though and they were far advanced over my home town and that is why my doctor referred me there.



Thursday, September 11, 2014

Missing Mom and other Things

 
Yesterday afternoon I went to the Senior Center to hear a talk about the history of where I live.  It was very interesting.  Since we are the birthplace of the ice cream sundae, we were treated to one!  I chose one drowning in chocolate syrup (I like a little ice cream with my chocolate!).
 
Some of us were chatting away and got on to the subject of death and dying.  I started speaking of my mom and how I think she knew she was going to die soon.  The tear started to flow...a lot.  I was fortunate that there was someone there that cared and was willing to listen.
 
 
I saw this on Facebook.  I love this. 
 
Today the plan is to clean, make dinner, take my son to work, and go to the Senior Center for Casino Night.  It is all for fun and with play money.  It should be a good time.