About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Saturday, July 16, 2016

July is Festival Month!

July is zipping by!
 
I was still struggling with my abdominal pain, then my psoriasis spread to my ears and also my neck and face.  It itches and there are huge flakes!  Many people gave me advice and I found that using T-gel shampoo (for severe dandruff) to wash the areas, and my clobetesol (prescription) ointment on my neck and ears helped.  I just left my face alone, and put Aquaphor on the dry areas.  Ta da!  So happy these suggestions worked!
 
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Went to 4th on the Shore.  Bands, food and beer!  You can see the Badger Car ferry on the shore of Lake Michigan!
 






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Last weekend was Subfest in Manitowoc.  Manitowoc is the home of the Maritime Museum, hosting our very own submarine, the USS Cobia.  During WWII, 22 subs were built in Manitowoc. 
 
 


 
 
The city has combined things from the past; vendors, music, magic, fireworks, all the things that work for a great festival!
 
 
 
They have painted the Cobia black this year.
 





We enjoyed the lighted boat show on the river, and then the fireworks!


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 Last Wednesday I had my final test at Froedtert Medical Center for my abdominal pain. Previously
 I had  an MRI which showed a healthy bowel with no active Crohn's.  Wednesday I had an ileoscopy which is like a colonoscopy but they go through the opening on my tummy.  No Golytely!  I just had to go on clear liquids on Tuesday!  (Insert smile).  I had sedation, which made me very sleepy all day long and a little nauseous, but my husband rewarded me with lunch at the Waterstreet Brewery!  Yum!
 
The results of my ileoscopy again, showed a healthy bowel.  So, what is causing the pain?  Apparently I internalize all of my stress (SURPRIZE!)  This causes electrical impulses to travel to the nerves, and hence, I get Crohn's, psoriasis, intestinal pain, and interstitial cystitis!  Lucky me, but it could be worse, so I will deal with reducing my stress through prayer, meditation, exercise and yoga.  Wish me luck!
 
 
 


Thursday, June 30, 2016

I'm Still Here, but with a New Look!

Hi,  I'm trying this again.
 
Summer has been uneventful, unless you count doctor and dentist appointments as events!  Because of all of this, I have decided not to volunteer at St Vincent DePaul.  I never know how I'm going to feel!
 
I have still been experiencing severe abdominal pain.  I decided to go to Froedtert Medical in Milwaukee for a consult as I have been there before for my abdominal surgeries.  The first order of business was an MRI was scheduled.  I got the contrast down, and got through the procedure, but I hope I never have to go through it again.  I think the noise of the machine would be a very good torture device!  Being enclosed did not bother me, as it was like a tanning booth.
 
The good news is that the MRI did not detect any active Crohn's or anything else.
 
Next step will be an ileoscopy.  That is like a colonoscopy but they will go through the opening on my tummy.
 
My psoriasis on my tummy is under control, but is flaring in and around my ears!   Sheese!
 
All this stress is adding to my urological problems, so my meds were increased to prevent any further flare ups.
 
Some days I feel like a mess, but it could be worse.  I still have not ridden my bike.  Will today be the day?  It is difficult when I have abdominal pain.
 
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Recently I got my hair cut.  I decided on a new "do."
 

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Last week I took my bff, and my great nephews to Bay Beach Amusement Park.  We met up with my niece and her husband and daughter.  It was a beautiful day, not too hot, and the boys were well behaved!  No crying!

My great niece talked me into some rides.  Here I am on the Sea Dragon (if you look real close).

 
In the middle. (the front on this pic).  As it swings, you are at a 90° angle looking down and looking up.  I didn't like it.  I closed my eyes.  My great niece kept saying, "It will be okay Auntie Debbie, you'll be fine, open your eyes!"  LOL.  She was such the little mother!
 
Next ride:  The Bumper Cars.  We had three who did not meet the height retirements, so I was recruited.  It wasn't too bad, unless we got hit really hard.  Hurt at the time, but I was okay after I got off.
 
 
That's us front left.
 


Friday, June 10, 2016

A Little Update

I have been experiencing horrible abdominal pain for over a month.  It has become more and more frequent, and more severe.  I went to the doctor at Froedtert Medical Center in Milwaukee on Monday.  He has scheduled a MRI and some type of scope for me for the 24th....the soonest I can get in.
 
I had three good days after he examined me and I thank God for that!  So far I feel okay this morning, but it is only 5:25am.  I took half of a pain pill last night and slept like a baby!
 
I bought a new used bike but haven't been able to ride it yet because either of the pain or weather.
 
 
 
It doesn't have hand brakes or speeds, but it has baskets and fatter tires.  It is just they kind of bike I can ride to Bible study at church!
 
Pleas say some prayers for me, and have a blessed week!
 
 
Deb...who got a new "do."  It's not that blonde, but it must be the lighting!
 


Wednesday, May 11, 2016

I deleted my blog, then I undeleted it.  I can't just leave without saying good bye.
 
I am just done blogging.  I will keep this up long enough so that I can follow by email your blogs!
 
Thank you.
 
Deb

Saturday, April 30, 2016

Stamping, Pain, Vacation and More!

STAMPING
 
As you have already surmised, I am quite impestuous.  At the crop last weekend, I signed up with
Close to My Heart.  That link takes you right to my website where you can order!
 
I don't really want to have crops or huge card classes.  That just isn't me.  My dream would to grow a virtual customer base and earn enough to keep me in stamps.  My next order of business is to watch training videos and create a card.
 
Next weekend I am going with my friends, Carolee and Gwen to the Sayner Stampede.  We have our little stops along the way.  Carolee and Gwen will be working at the Round Robin (where people go "round" and make six different cards).  I will be in the motel room resting.  On Saturday we visit the  used stamp sale.  I still have to price my things for the sale!  The Sayner Lioness takes care of this sale and does a wonderful job!  For their work, they get to keep 20% of the profits.  We also go visit the vendor booths and make the "make and take" cards.  My main interest this year is to do the make and takes and have fun.  I certainly don't need to shop unless I find something that I HAVE to have!
 
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Pain
 
My tummy continues to be a source of pain and irritation (no pun intended).  Thankfully, my new medical supplies came in the mail yesterday and hopefully will resolve my problems.  If not, I am determined to call Froedtert Hospital in Milwaukee for an appointment.
 
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Linda
 
I had a bad cough this week so I couldn't see Linda or take her to the clinic.  Her breathing was becoming more labored, even after they did another thoracentesis (to drain the fluid around her lungs) last week.
Carolee took her to the doctor Thursday and after more tests, they decided that she needs surgery and a permanent tube to drain the fluid around her lungs.  At least she will be able to breathe better!  I have felt so bad that I could not see her.  I don't know what to say to her.  What can I say?  Tomorrow I will see her and Monday she will have her surgery.  Kevin has been at her side.
 
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Vacation Continued
 
The next morning we got up early to board the train that would take us to the Grand Canyon, but first, we watched the "Wild West" show.  It was quite entertaining and wonderful, especially for the kids!
 
 
We then boarded the train.  Jim and I were on a luxury dome car.  I had a Virgin Mary and we could help ourselves to the breakfast bar of yogurt, fruit and pastries.



Breakfast of Champions!

No, this isn't my husband!
This isn't him either!

The Grand Canyon National Park!






 
 As you can see, pictures don't do it justice!
 
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Bible Journaling
 
 
I have been trying my hand at drawing and Bible journaling.  This is for 1 Peter 5:8
"Be sober-minded; be watchful. Your adversary the devil prowls around like a roaring lion, seeking someone to devour."  ESV
 
It is kind of a skinny lion...maybe that is why he's seeking someone to devour!


Tuesday, April 26, 2016

Day Crop and Vacation Continued

I know I am really lagging behind in my blog.  Too much going on.  That's not necessarily a bad thing.
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Day Crop
 
This last weekend I went to a day crop.  It was a whole day, from 9-9 of scrapbooking, laughing, and
eating!  (not in that order!)  I was working on our church scrapbook and got quite a bit done.  There were games for raffle prizes.  I won some page layouts (paper) and two boxes of photo paper!  I also won $15 off of my order, and 50% off of my next item of my choice.  The girls who were holding the crop provided the meals, like bagels and fruit; cold cuts etc. for sandwiches, chips, dips, and in the evening Sloppy Joes, and pasta salads.  Yum!
 
The long and short of it was that  I signed up with Close to My Heart.   That link will take you right to my website!  I am hoping to be more of an online consultant, as I have too many health problems to be lugging stuff all around!
 
I am offering a free gift to the person who puts in their first order with me!
 
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I am still having health problems, mainly my psoriasis on my tummy and pain with my ileostomy (not normal).  I am waiting for different medical supplies to arrive.  One type feels more comfortable, but is worse for my skin.  The other is better for my skin, but I end up with more pain.  If things don't resolve themselves with my new medical supplies, I decided to go to Milwaukee to Froedtert Medical Center.  I am sick of running all over the place for this, and not getting anywhere!
 
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Vacation Continued
 
On the second day of vacation we were driving up to Williams, AZ.  On the way we stopped at
Rock Springs Café.  It was such a coincidence in that is the place Jim's friends took the guys when they were down on their golfing trips!  They have excellent food and home cooking!  Jim didn't even realize it until we were inside the café!
 
 
 
 
 
We got to Williams in the afternoon.  The
Grand Canyon Railway Hotel was lovely and within walking distance of "downtown."  The downtown is on Route 66 and consists mostly of restaurants and gift shops. 
The historic brewery intrigued me.  It is a micro brewery with many different types of beer and ale and also gourmet sandwiches and side!
Jim enjoying the carrot cake, with pieces of carrots in and like a carrot type
of sauce, whipped cream and ice cream!
 
She is writing all the special beers.  Jim had one that had Undercover Cucumber.
I wanted him to try Funky Gold Medina, but he declined.

After the long night before, we were ready for an early bedtime.  I slept soooooooo good!
 
 

Sunday, April 17, 2016

First Night of Vacation or "On a Dark Desert Highway"

Mulling over if I should discontinue my blog?  What else is there for me to do at 5:30 am?  A friend and I were discussing that blogs sure suck up a lot of time, both reading and writing!  Mine has never been that interesting, but I will try to write something today.
 
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April 3rd we flew to Arizona.  We landed about 10:30pm.  We rented our car (the mid size was not available, although it was reserved).  My husband brought the GPS, and entered the address of the resort we were staying at.  We should have got something to eat right away, but drove through a drive through thinking we could eat when we got to our condo.
 
Well, if you enter "Boulevard" instead of "Parkway," it makes a BIG difference!  We drove, and drove some more.  I never realized how spread out Arizona is!  Finally, as we were nearing, we hit a road that says "ROAD CLOSED."    Okay, now sing with me, "On a Dark Desert Highway...."
 
Thank God for cellphones!  I called the resort who has 24/7 front desk check in.  The clerk looked up on MapQuest where we were, and directed us back on course!  When we got to the resort, we checked in and drove to the unit.  There was not place to park.  We went back to the desk and the clerk said we would have to park near registration and haul our bags to the condo unit...in the dark....at 1:30am!
Long story short....we ate lukewarm burgers at 2 am.