About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Wednesday, March 16, 2011

I'm Not That Crazy Anymore!

I  am a very sensitive person.  I get saddened by world events and need to contribute to the Red Cross and Salvation Army.  Still, I wish I could do more.  I get angry at those who say that Japan did nothing to help the US when disasters in the form of hurricanes struck.  I can't blame the faces of the Japanese for that.  Maybe their government was wrong, but the people are like us....blameless for the natural disasters and even the the unnatural, in the way of radiation.  How much control does the public really have?  How much control do I have?  Not much.  Oh sure, I can vote, but I can't sway the way things go in this state or this country.  It is what it is.

That said, back to my little corner of the world.  I want my meds changed.  I have gained 22 pounds in three years, ten in the last four months!  What is with that?  My sleep has been erratic and I am tired much of the time.  When I found out I had kidney disease, I got depressed.  Work was just plain sucking at the time.  A doctor was riding my ass big time and I was so stressed.  We had a new co-worker (poor girl) and I just would cry all the time, uncontrollably!  My hours were cut and I lost my benefits.  No relation....so they say.   I had also gone off my hormone replacement so, that could have something to do with the depression and weight gain.  Then, experimented with different antidepressants until we found the right cocktail. 

Here I am three years later.  Work is going well.  The new coworker and I are good friends.  I only cry when I miss my flight connection...LOL.  Anyway, I don't cry all the time anymore.  I don't want to start, but I hate being on all these drugs.  I am on enough for kidney disease, interstitial cystitis, high cholesterol, triglycerides, etc...  Just give the girl another pill!

Anyway, my doctor is testing my thyroid, possibly my B12 at a later date, upping my Omega 3, and doing whatever she can so I can get control of this.  It's not easy being me....I'm a virtual pill popper.
I know...it could be worse...it's not cancer.

Today I hope to get at my basement again with my hubby and get my shelving unit put together.  That would make me happy.


Tracey said...

Interstitial cystitis is the most horrible thing EVER. That's how Amy's problems all started. You have my upmost sympathy...xxxxxxx

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