About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Sunday, May 1, 2011

I hurt

It hurts to sit, but I have been lying down most of the day.  I was in the ER this morning with Interstitial Cystitis...my first flare up in six years.  Not fun, but want to nip this in the bud.  I want to go to St Louis on vacation.  Dr gave me all the cystitis type meds, antibiotics, etc.  Couldn't do a urinalysis as there was too much blood.  I am sure the culture will come bact negative.  It almost always does.  Wish the ER could have given me my first dose of meds, as by the time a pharmacy opened and we got things squared away with our insurance, it was almost 3 hours later.

I rested most of the day.  The laundry will have to wait.  I will not get my stuff priced for the big stamp sale.  At this point, I don't care.  I have many errands to run tomorrow.  Will I be up to it, or will we have to cancel our hotel reservations and trip?

Have to crawl back in bed.

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