About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Saturday, October 22, 2011

Life is a Little Better

Yesterday we packed some things up for Mom.  It was sad.  I know I will never be able to go over there for lunch again. 

We bought Mom a new comforter and she liked that.  Put some more things in her room to make it "homey."

I washed Mom's face, put a little makeup on her, then we managed to talk her into seeing the place.  She said all the people there are loony.  Unfortunately they are more so in her unit as they require more care like she does.  We took her to see the aviary and then the "town square" and chapel.  The facility is quite pretty, but I am wondering about the care.

She doesn't like the food, and if they don't offer an option, she doesn't suggest it.  I told her to go ahead and bitch if she needs something.  The room they show you is perfect, then you get this
mattress that is awful, crummy food, unruly patients, etc.  Things are never what they seem.  Now she is saying the other nursing home had people in it that she knows.

Baby steps, ha!  I am calling Hospice today.  Mom has her good hearing aide and still can't hear.  I don't know if it's the sound of the oxygen machine or if she needs her ears cleaned.

I slept a little better last night.  Actually slept until 4am!  That is almost 8 hours.  I will take a nap sometime today, do my own laundry, put my summer sandals and shoes away.  I will take baby steps too.

The good news or is it?  I have a job interview on Monday.  It would be for the same thing I am doing now only at the competitor's clinic.  I wouldn't be parking my car next to Mom's apartment, I would be working three days a week and get benefits too.  I just put it all in God's hands.


BadPenny said...

Oh I feel for you. I have not had to go through this yet. Mum is well and I was not involved when my dad got ill as he had remarried & it was out of our hands. My inlaws though have had major surgery for cancer are fairly fit.

So I can only say that I hope your mother's care gets better and she is comfortable as possible. Very difficult times for you.

I'm glad my post made you giggle today xx Take care.

Pam @ over50feeling40 said...

I will say a prayer for your interview Monday! So glad things are getting better...just take it one day at a time.

Gill - That British Woman said...

glad things seem a little better. I guess it will take time for her to get used to how everything works.

Good luck with your interview on Monday,