About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Friday, October 21, 2011

Life is a Series of Baby Steps

Life is a series of baby steps right now.  I am still awake at 3am, but I'm not crying.  The nursing home staff dressed Mom yesterday and she went to the dining room for breakfast.   Baby steps.  She is getting used to her surroundings. 

I am sure things will improve once she has her hearing aide.  She can hardly hear right now so that must be scary.  She will feel more social when she can hear.

I am slowly going to let go and learn to trust the staff at the nursing home.  Baby steps

A week ago, we thought Mom was going to die.    Now we have a new reality.
Plan for today:  Buy her some "nursing home" clothes and  a new comforter for her bed.  We are working on making her room prettier, although it is decorated quite nicely with paint and wallpaper border, etc.

Yesterday we paid for the funeral trust.  Today is a fun day to make Mom happy!.

1 comment:

Gill - That British Woman said...

onwards and upwards as they say!

Gill