About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Sunday, October 16, 2011

Some Kind of Normalcy

My bff took me to Hobby Lobby yesterday.  It was good to go somewhere other than the hospital.  I needed some sleeves for my scrapbook pages and they were on sale.  I also managed to find a photo book at 40% off for my sister's birthday .

We then went up to the hospital.  Mom is sleeping quite a bit now.  We went to the cafeteria, came back upstairs and my brother and sister were there.  I have not been sleeping and fell asleep in the chair in my Mom's room.  We  met with the hospice nurse.  We had questions as to whether or not she shouldn't be back on antibiotics.  In the end, it is Mom's decision.  She doesn't want to live out the rest of her life feeling nauseous.  The nurse said no doubt that Mom will be transferred to a nursing home.  I hate to do it but she will get care 24/7 and I don't think any of us could provide that for her.

Our children are having a difficult time accepting this.  In this time of modern miracles, why can't Grandma be saved?  It is difficult to explain to them that if it isn't the pneumonia, it will be something else, like the septicemia.

We stopped by her last night and she was resting comfortably.  We went on with our lives.  Hubby and I went out.  It was a nice diversion, but then I came home realizing that life goes on amongst the pain.


Pam @ over50feeling40 said...

That is one of the sobering realizations is that life goes on no matter what is happening around us. Moving my mother to a nursing home was so tough and I think she is still mad at us, but the reality is we need the help. She tried living with me and it is just too tough on both of us. I appreciate so much a good nursing home and the love they can provide. It gives great peace of mind. And remember to cherish each day one day at a time and to take care of yourself.

Gill - That British Woman said...

I hate to agree but life does go on, and she is in the best place possible for her at the moment,

Gill in Canada