About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Saturday, November 26, 2011

50 Years Ago

I was discussing with a friend how spoiled we are now a days.  Thanksgiving fifty years ago was so different.  EVERYTHING was  cooked on the stove or in the oven.  We didn't have microwaves.  Later we heated our leftovers by putting everything back into kettles and making more dirty dishes.  We certainly didn't have dishwashers.  We used meat grinders, not food processors.  Coffee came out of a percolator.  Mom did laundry in a wringer washer and hung it on a line outdoors no matter how cold out it was.

We didn't go Christmas shopping online, or have stores open at midnight for Black Friday.  The bell ringers were downtown (no malls).  We shopped from store to store.  We visited Santa and put money in the kettles.  Christmas music was in the air, but not in November.  We didn't use credit cards, but Thank God for Lay-away!

What are your memories of this time of year?

Friday, November 18, 2011

Life Feels Surreal

Life feels surreal.  A month ago, Mom almost died.  Now she is doing so well in the health care center (nursing home).  I am happy for this.  I wonder if Mom will decide to stay there or with my brother.

I got a new job out of the blue.  Oh sure, I had been applying for different jobs for some time, but why, when life was at it's worst, did I get called to interview.  Well, I got the job!  Yesterday I gave my notice and my resignation.  December 9th is my last day at clinic "A" and December 12th I start at clinic "B."
I am scared, excited, sad to be leaving my friends but feel thankful that at my age I can still start a new chapter in my life!

Everything is happening so fast.  I have to get things out of my Mom's apartment yet.  I have to clean my house for Thanksgiving.  Before you know it, it will be January!

Exhausted but happy.

Friday, November 11, 2011

Sometimes You're the Windshield, Sometimes You're the Bug!

It's laughable, really,....the kind of week I've had.  Tuesday I had a car accident.  My fault...failure to yield.  It was inattentive driving to me, but in my defense, it was a dark, gloomy day and raining.  The other car came out of nowhere and didn't have their headlights on.  No matter, I got a citation.  No one was hurt, the cars slightly damaged, but still my insurance will have to pay to repair the other person's car.  I am keeping my war wounds on my old car.

Tuesday night I soiled my bed sheets...my ostomy acting up again.

Wednesday we had a work meeting at lunchtime.  I spilled my soda.  I also laughed and doing that, my ostomy appliance came loose, and yikes, I was a mess!  Good thing for change of clothes and for coworkers who can cover for me.

Thursday night the ostomy appliance sprung another leak.  This IS getting bothersome.  Thank God for washers and dryers and an understanding husband who helps me change bedding in the middle of the night.

I called to inquire about the "job."  I was told human resources would let me know by the end of the week.  I didn't hear anything....guess that's my answer!

It's been a strange week.  We have a beautiful harvest moon!  My mother is improving.  Her oxygen has been decreased markedly,   She is walking with a walker (and an aide to shadow).  She will also walk without anyone there!  She is so determined!  I plan on visiting her again tomorrow.  Sunday I will go with bff to her grandaughter's birthday party.

I am content, all in all.

Saturday, November 5, 2011

A Happier Place

Yesterday was a long day, but certainly worth it!

I job shadowed.  I guess I am the second person to shadow for the job.  They will discuss it on Monday and I should know by the end of the week if the job is mine or not.  The morale there is great and they have great teamwork!  It looks quite challenging too.

In the afternoon, I met my Mom at the clinic.  She saw her doctor, had xrays twice cause the first couple didn't turn out.  Her blood work came back good...no infections.  Her pneumonia is better than it was and she is going on an antibiotic.

Thursday was a day for her too in that they moved her to a unit where the people were a little more with it.
She likes that and likes her room too.

Today I am going to do her nails.

I am in a happier place.

Tuesday, November 1, 2011

The Plan

We met with Hospice yesterday to discuss Mom's plan.  She is going off of Hospice so she can go to the doctor and get a second opinion and chest x-ray.  This way we will know for certain whether she should go back on antibiotics or it is useless.  It will clear up any "what ifs."  Mom agreed that if she does need an antibiotic they can give her something for nausea.  My brother and son are in huge denial, so this will be good for them as well.  It is hard to accept the fact that Mom is where she is and that we will lose her one day.

We discussed the nursing home.  She is always cold.  We don't know that we can do anything about that other than bring her a nice throw.  She is still on a waiting list for a room where most of the residents have their faculties.  She is sick of Halloween and I left my "damn" pumpkin there.  (Think Maxine).

Picked up Hubby's car.  It needed new brakes to the tune of another $500.  Yikes!

Had 75 Trick or Treaters.  Love the little ones!  Was fun to see my great nephews!

Today I am going to the beauty school.  I have a coupon for a free haircut.  Then I am getting my nails shellacked (on sale for $5).  Shellac lasts longer than nail enamel.  It is something I need to do for myself.