About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Thursday, April 10, 2014

Coming out of Hibernation

It has been a while since my last post.  Again, nothing much new.  The cough lingers on, but I am starting to come out of hibernation.    I got my hair cut and colored (wash away that gray!)  There is still gray, crusty snow on the lawns and not much greening up, (can't add color to the landscape yet) but I can finally put our winter jackets away!
My Mom had an incident the other night where she woke up very short of breath.  Apparently (this is their story), the oxygen tubing had a pin size hole in it or a kink.  They put the breathing mask on mom as she was beginning to turn gray!  This was not reported to us or the unit coordinator.  I question whether it was even documented, but it magically appeared in the documentation yesterday.  (after I said, that we could have had a lawsuit).  Mom has not been feeling so well since.  She is fatigued, no appetite, etc.  Maybe it will warm up more so we can take her outside!
My bff, Linda, needs your prayers.  To protect her privacy, I will leave it at that.  Thank you so much.

1 comment:

Linda said...

62 us a great age! I know! Yes, you are blessed and have a lot to be thankful for. Many years ago after, I was in an auto accident and was hospilized for 5 weeks, I was feeling sorry for myself...well....one of the nurses told me about a young man who was admitted and he had a lot more serious injuries than I did. That stopped my pity party right on the spot. There's ALWAYS someone worse off than you are! I try to look at things in that light, someone is much worse than I am. I also think "If he/she can do it, I can too".