About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Sunday, September 14, 2014

Sunday Snippets

Some of my crafting friends and I play a little game.  It is word bingo.
I am calling this month's game and have chosen words pertinent to my journey in life.

Interstitial Cystitis:  Another one of my autoimmune disorders, characterized by pin sized ulcerations of the bladder, bleeding, pelvic pain (like getting kicked in the crotch).  Before I was diagnosed, they kept treating me for a UTI and the symptoms would persist.  I am on medication to prevent flare-ups now.

Adoption:  Our son is adopted.  We had trouble finding an agency.  Seemed we had to be either both be Lutheran or both Catholic.  There are no agencies to the east, just the lake.  We couldn't afford a private adoption, so we applied through the state where religion and income are not a factor.  This was 1981.  The state selected through a lottery system and our name was pulled!  Woo hoo!  Then later, the state discontinued their healthy infant adoption program, so they placed the applicants with other agencies to be studied according to state guidelines.  The agency would study three of their applicants before going on to a state applicant.  That process took years.  We were finally placed with Children's Service Society in Milwaukee in 84.  We had to attend classes in Milwaukee (a two hour drive) every week for five weeks.  We each also had to write a 20 page autobiography, followed by a personal interview.  Our social worker argued our case as I was almost turned down because of my history of Crohn's Disease!  We got Danny on December 18, 1985.  He was 12 1/2 lbs because he was a preemie.  Later we discovered he had cerebral palsy and were offered the option to "trade him in."  NO!
Anyway, wonder if all new parents should go through this process!

18.  University Hospital of Wisconsin:  I spent three lovely summers there with Crohn's Disease from 1971 - 73.  The old hospital had a beautiful lobby, but that is where it ended.  Rooms were not air conditioned.  Many died during a heat wave.  Would also get all those nasty baby flies by my hospital bed.  They were all over my pillow and this one dorky nurse just swatted the flies on my pillow.   I didn't have a bath or shower.  My cousin came and cleaned the tub down the hall so I could have a bath.  I met many other young adults with various illnesses and formed friendships that were separated by death.  The medical care was the best though and they were far advanced over my home town and that is why my doctor referred me there.


NanaDiana said...

Wow- You have certainly had your share of things happen in your life, Debbie. Can you imagine a hospital like that here in the US today?

I can't imagine giving a baby up once you had him because he had physical issues. It would tear your heart out. xo Diana

Carolee said...

Very interesting! You could use that autobiography as a beginning to continue your story. You could educate a lot of people with you story!