About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Friday, March 28, 2014

Mom update:

Mom turned a giant corner. She is maintaining her oxygen level at 3 liters (that is good) and if she keeps it up, will be going home tomorrow! I can't figure it. One day we are told to cancel our trip, that it doesn't look good, that the nieces and nephews should come up, and now she is going home? Must be prayer! I am still sick with bronchitis.

Wednesday, March 26, 2014

More news

Thank you for all your prayers and please keep praying!  I really do feel uplifted in prayer.
 
  Monday night I got quite sick.  I thought it was just a cold and/or sinus infection but my whole head felt like a balloon ready to burst.  I had such a tremendous headache, the worst in my entire life.  I had body aches, chills, the sweats and started throwing up.  Anytime I tried to eat or drink water, up it came.  I suffered all night.  I thought Jim should bring me to ER for an IV (I dehydrate easily and have kidney disease), but he didn't realize how bad I was and I did not  want another bill.  When the morning came I waited till 8am to call the clinic.  I could get in with a nurse practitioner in two hours.  That wouldn't work.  I had no one to take me.  Finally I called a gal from our church that I am quite close to.  She took me to the ER.  You get in rather quickly when you are upchucking in their wastebasket!   Still, I waited quite a long time in the room as there were critical cases there.  More waiting, more pain, more nausea and chills.  It took quite a while for the IV to kick in.  They had to give me a second dose of pain and nausea med.
 
Meanwhile,  I was  waiting for my husband to get home from work.  When I dozed off, there he was!  My sister was in the same hospital with my Mom.  She is not doing well.  Her oxygen level is down and the pneumonia is now spread to both lungs.
 
When I got home, I felt quite dopey, but managed to call and cancel our trip to Savannah.  Another couple will take our place and we will get a full refund.  I made my follow up appointment with my doctor, and cancelled my hair appointment as I did not know how I would feel today.  I am hoping to sit with my Mom, even if it means wearing a mask today.

Monday, March 24, 2014

Update on Mom

 

Thought we were going to lose Mom yesterday, but she came around and by dinner was sitting up in the chair and eating toast! Completely opposite of Saturday night and Sunday morning! Cried so much, slept so little. So far have not received a phone call from the hospital, so that is a good sign. Hope she is resting well. Many thanks for prayers.

Saturday, March 22, 2014

Prayer Request Please

My Mom is in the hospital with pneumonia.  We figured that was the best place where she would get good care and she agreed (finally).  She has not been running a temp which is a good sign, so maybe with intervention now, she'll kick it again.

Thursday, March 20, 2014

A Busy Week

What a busy week!  Last Thursday I had a meeting with the volunteers for The Salvation Army Red Shield Clinic.  It was very interesting.  I learned that I will have an office to work in and help procure
medications from drug companies for indigent patients whose drugs aren't on the Salvation Army list
(ie. the list of meds that the clinic can pay for).  For now I will be the receptionist the fourth Tuesday of each month.
 
Facts I learned:  Did you know that if a person lives in their car, they are not considered homeless by the federal government?  Did you also know that people who couch hop (live from friend to relative night to night) are also not considered homeless?  The Salvation Army Clinic will look at the whole person and their needs and not just their medical conditions.
 
Tuesday night I was having a Stampin Up party!  Of course, we waited till the last days to clean.  Does anyone else do this, or do you have a regular weekly schedule?
 
Ten people showed up for my party.  It was a challenge getting the instructions straight with everyone yapping away!  Still, we had a lot of laughs!
 
The first card made was for me from a kit that the demonstrator sells.  I love the dotted paper!
 
 
Next we made this cute Easter card.

 
Lastly, we made this very complicated card.  Complicated, cause everything is done backwards!

 
The jury is still out if I like the antique effect or the chalk paint.
It was a very successful party.  I received over $100 in free product!  So exciting!
 
Yesterday I worked at the Senior Center as receptionist.  Whenever I have to work, I also buy the meal.  They have the most delicious deserts!
 
Today I am going to visit Mom.  The health care center had to increase her oxygen.  She has a cold and is despondent about being ill, afraid of getting pneumonia again.  Please pray for her.
 


Thursday, March 13, 2014

Red River Gal

 
 
This is my Mom when she was about 16 or 17 years old.  She sang with a Country band, The Sunset Valley Boys and she was their Red River Gal!  She could yodel back then and played at dances and was recorded on the radio!  She taught me how to yodel when I was little and I can still do it (if I'm drunk?) 
 
She met my dad and that was the end of her singing career!

Tuesday, March 11, 2014

Another Day, Another Purse!

Yesterday was a beauuuuuuuuutiful day!  I spent it going to visit Mom.  She has been quite tired of late.  I also think she is having Spring fever.  I will be so glad when the weather is more dependable and we can take her out.  Maybe I will shoot for later this week.
 
The Salvation Army still wants me to make calls to pharmacy companies to get medical supplies and such.  I was supposed to go tonight, but the nurse is not available to go through it with me.  I said April will be better after my vacation.  I have a meeting for volunteers on Thursday night and will be working reception on the 25th for their clinic.
 
I bought a purse on eBay today.  I know, another purse, but this one is a Travelon bag.  It will have room for my medical supplies, a water bottle, camera, money, etc.  This just may be my Summer bag!
 
 
I am getting excited.  Hubby and I leave for our trip on April 5th to tour Savannah, Georgia and also Beaufort, South Carolina.  It is a bus trip sponsored by the Senior Center and was quite reasonable.  I like having my hotels, meals, and tours all planned out for me.  The weather will be in the 70's!
I have been to Savannah once visiting with friends, and thought Jim has got to go here some day.
I am happy for the opportunity and hope that Jim enjoys this trip.
 


Saturday, March 8, 2014

A Night for Legends

Last night I went out with my sister for some light dinner and a concert.
 
The Senior Center was sponsoring a benefit concert, Ultimate Legends of Rock.  These impersonators were great considering the cost was only $15,  soda and beer $1, popcorn for a donation.
 
We saw "Buddy Holly"
 
We saw "Elton John."  I couldn't get his picture with my phone as he was wearing a black suit (with stars and a boa)  and was way to the left.  He played and sang magnificently though!
 
Then on to "Rod Stewart"  He really gave us a show and was sweating up a storm, dancing on stage and into the audience!  Many people kind of sat there like bumps on a log (guess they were too old for Rod, but I liked him).
 
 
And, what Legends show would go without "The Blues Brothers?"  They also came into the audience and they rocked the house! 
 
My sister and I were some of the younger audience members.  (I am soon to be 62).  When we visit our Mom at the nursing home, she enjoys when they have a country band playing in the "town square."  She would have enjoyed this, but it would have been too long of a show for her.
Sister Connie and I imagined what we will be like if we end up in a nursing home (oh excuse me, resident living).  I will complain that they don't have enough Beatles music or Rolling Stones, and too much Led Zeppelin!...LOL.   We will rock in our wheelchairs! God, I hope I don't live that long!
 

Wednesday, March 5, 2014

Memories to Record and Some Better Forgotten

Last weekend I went with my bff to our annual scrap booking retreat with our Ahni and Zoe consultant.  It was at Pine Lake Camp near Waupaca, WI (where we went last Fall).  That one was sponsored by the camp, but this one is through the consultant.  She had one last February and it snowed and I think she ordered snow again!  Well, we made it, and it was so nice to be at camp as it is so beautiful with all the knotty pine, fireplace, etc.  The meals are provided all day Saturday and
Sunday for breakfast.  There were plenty of snacks too!

Oh!  And we scrap booked!    I scrap booked my photos that were in an album that wasn't acid free, so took them out of there and wa lah!  I still want to do some journaling as this trip was in 2000 and my memory is already going!  The important thing is that it was our first big trip to celebrate my good health and being cancer free!  It was the first time I saw the Caribbean (St Thomas), iguanas, salamanders and ate mango!  My scrapbook is nothing fancy, but I like it and it is full of good memories.




 
And....I made some cards.
 
 
The bad news is that I got quite ill Friday night and our consultant and another gal brought me to the ER in Waupaca.  So over the icy roads we go!  I have Interstitial Cystitis and it decided to flare.  It is like a really bad bladder infection that has no cure, but with luck , can be controlled.  They gave me a couple of shots, one to relax pelvic spasms, and one for pain.  I get sick from ALL narcotics, so then I was sick from that!  I spent most of Saturday sleeping, but managed to get some work done.  Then, on Sunday, I felt another flare coming on so we went straight home.  Later that night, hubby took me back to ER and I am back on my meds that I had discontinued a year ago when I was in remission.
 
Did I tell you I won a prize?  I won a paper punch that embosses and punches out a star!