About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Tuesday, October 28, 2014


My bff, Linda has cancer, and now CHF.  Sometimes it seems like I have been down this road before.
My younger sister had cancer.  I am reminded every time I see Linda in her cap (without makeup too!)  It's not her fault.  It is just the way it is.  It terrifies me.  When my younger sister died and her husband remarried (Linda), we welcomed her into our family.  Kevin was just closer to us in many ways.  We celebrate the holidays together and none of that stopped when he married Linda. 
Linda and I became fast friends despite our intentions!    In many ways, she has become like a sister to me.  So....I am terrified of losing her!  I keep telling myself that medicine has improved and it has.
My heart breaks that she is not the same Linda.  She has become weak, tired and frightened. (At least I am frightened).  All the things we do together, trips, retreats, and  thrifting, is put off till next year.
This has been a long road for her.  She was diagnosed around the same time that my mom had died.  How's that for timing?   
I am staying strong for her, but last Sunday when someone asked me how she was doing, I lost it.  Then, after our church voter's meeting, I told everyone that a few weeks ago, Linda looked good!  She did!  She dolls up like nobody's business!  She acts strong and like everything is okay.  I told them it's not.  I told them to pray at home and please be supportive of her, and I almost started crying again.  Then, I told them that I would appreciate it as well as Linda and her husband. 
 I hate to see this strong, independent  woman in such misery.   When someone is sick like this, it affects their friends and family as well.  I am asking you, my blogging friends, to pray for her, so she can get ready to jump the next hurdle, surgery! 
(I would post a picture of us together, but the old computer crashed and now I have to reload them all back in!)
P.S.  Linda, I know you'll read this, and I am sorry, but I love you!

Thursday, October 23, 2014

Card Party

I went to a card party last night.  No not these kinds of cards!

These kind:

The second card is an easel card.

The gal who had the party is disabled.  She is a walking miracle (with a walker).  She had brain stem encephalitis and was in a coma for a very long time.  She was told she would never walk or anything again.  HA!  She has her own apartment and her joy is infectious!  It is fun to just be around her.

I did make some purchases from the Close to My Heart Consultant....shimmer tape in several colors.
We used it on the second card although you can't see the shimmer on the photo.  I got a ride with the consultant and I think we are becoming fast friends.  She has Interstitial Cystitis too so we compared notes on that.  She works a full time job, a part time job and sells CTMH!  She is also active in her church.  I wish I had her drive and ambition, but she is much younger than me too.

Wednesday, October 22, 2014

Why on the Weekend?

Why the weekend?  It seems whenever I get sick it is on the weekend, at a time when the clinics are closed, so I end up in ER!

Sunday night I ended up there.  I started to have symptoms of a urinary tract infection or interstitial cystitis on Thursday, but took some meds and by Friday I felt fine.  Of course!

My husband had to go into work for 6 pm  Sunday evening.  My symptoms had reappeared that day and whatever I did Thursday, didn't help.  I had to pee every two minutes and it hurt!  It just was a throbbing pain.  (Okay, it's not cancer, but it was a nuisance and a pain none the less).  I didn't want to spend another sleepless night in the bathroom.  I couldn't call my bff...she has worse battles.  Fortunately, another friend was able to take me to the ER and my sister met me there. 

When I got there, it wasn't busy, but as soon as I got in the examining room, a real emergency came in, so I laid there.  (hope they don't charge by the hour!) 

Everyone was really nice. I saw just about every nurse that was working at one time or another.  The doctor did a brief exam.  They weren't sure if the interstitial cystitis was flaring.  By this time, I was passing blood clots.  They prescribed and gave me an antibiotic and the wonderful pill that turns your pee orange!  I told them, that I have been in ER with these symptoms enough times to know what helps and that is a shot of Valium in the butt!  They complied!  The spasms quit. I went home, took something for pain, and when I got really, really tired, went to bed and slept!

Today  I get to go back to the periodontist for a check up.  It's always something.  My bff and I were discussing this fact.  Seems the older we get, the more everyone we know is having surgery or health problems of some sort! We didn't worry about this in our 40's and 50's!  Recently a classmate of mine died.  I guess I am the age where I need to read the obituaries!

Sunday, October 19, 2014

34 Years, but Who's Counting?

Yesterday marked our 34th wedding anniversary.
Way before Hallmark, the florists, and jewelers decided to make October 18th Sweetest Day, we had chose it for our wedding day.  We wanted the fall with it's colors, and the church and dance hall had all lined up for that date!  It was a warm October day and I could just wear a sweater over my shoulders when outdoors.  The fall colors were at their peak that year!  I thought our service was beautiful.  (I will never understand why our pastor referred to "Who's Afraid of Virginia Wolf?" in his sermon!)
We did our wedding on the cheap.  I had invitations printed at a Quick Print in black and white.  (Good thing as our church was being remodeled and I had to get them all reprinted!)  My dress came off of the rack.  Our flowers were Mum plants (except for the bouquet and wedding party's flowers).  
The hall was just a typical dance hall in Wisconsin with broasted chicken and tips.  We had a polka band that wasn't very good and no one danced.  The band didn't play any of our requests and there was no wedding march.  We also forgot to cut the cake!  I felt bad that our reception was oh so boring and goofed up.  Jim was missing most of the night as he was busy entertaining his family!  I ended up at the bar with my brother in law sulking.  All of a sudden, Jim appears and says "let's go home!"  I told him how disappointed I was with our reception, and he said it didn't matter..."we're married! That's what's important!"
Last night we went out to dinner somewhere where we hadn't been before.  It was okay...nothing fantastic, but that wasn't the point.
I was kind of sad that we had passed the cemetery where mom is resting, but Jim didn't want me to get all upset.  Still, I felt so melancholy driving through the areas where mom grew up and was married, remembering her stories!  Jim said it will take time to
come to terms with our loss, but she would have been happy for us and loved us both. 

Friday, October 17, 2014

Mid Week Get Togethers and Get Away!

Last weekend was quiet.  We were waiting for midweek when all the action would start!  Jim has vacation this week.  His sister was up from Georgia and visiting another sister in southern Wisconsin.  We all were invited for a visit and dinner.  It was good to see everyone again. They are spread all over the place so we don't see each other often.   This is Jim with his sisters:
He is the baby!
Wednesday Jim and I went away for a one night get away near Wittenberg, WI.  It was rainy so I couldn't get any pictures of the fall colors.  They are fading fast!
We stopped at Nueske's Meat Market.  A "must" if you you are in the area!  It is all done in antiques and quite scenic.

Last night I didn't sleep well.  My interstitial cystitis started to flare up.  I was afraid I would end up in emergency.  I took a pain killer and an muscle relaxer to stop the bladder spasms.  I also increased my meds back to the original dose.  I am okay now but quite tired today.
This Saturday is our 34th wedding anniversary.  I wonder if Jim and I will go out to dinner?

Thursday, October 9, 2014

Midweek Catch Up!

The other day, I felt like I was in such a good place.  I felt so at peace!
Something flipped my switch.  I think it was some comments that were made and the the tone of voice that hurt my feelings. 
It was supposed to be a fun time, but at our Red Hat meeting, I felt a panic attack coming on.  Tears welled up but did not roll down my cheeks.  I just cannot handle large groups and all the noise!  Our Red Hat group started with five people; now we have 17!  I love each of the women individually, but put them all in a group, and it is difficult for me.   I used to be Queen, but resigned as I just felt like it was time and it was adding to my stress.  Well, I am not crazy about how things are being run, but I have no one to blame but myself.
I planned a day trip to an orchard and restaurant.  Only six Red Hatters are going, so I will be sure the rest of them know what a great time they missed!  Isn't that just evil?

Maybe it is just me, but I think I'm getting old...am I?  I went to the Beauty School to get my hair colored (I am thrifty that way).  So many of the girls  are wear leggings and yoga pants.  Women, young and old:  Please wear a tunic length top with these!  Not everyone has the figure, and even if they do, I don't want to see a detailed look at your tush!
My hair didn't turn out like I wanted this time.  There was a different instructor, no notes on my card and they did a different process.  It didn't work, so they had to shampoo and dry my hair again and do the highlights again!  I was there four hours! 
I guess I get what I pay for, but they noted it on my card, and next time, I'll pack a lunch!

Monday, October 6, 2014

A Much Better Week

This has been a much better week, nothing exciting, but better.  I am not sure what was different about it, but it was.
Last Thursday I volunteered at the Senior Center.  I have the first Thursday morning of every month.  I wasn't completely with it as I was really tired that morning, but at least I know they won't fire me!
Thursday evening I had a fish dinner compliments of my bff who always seems to be winning radio prizes!  It was very good and the price was right!  Friday night my husband, son, sister and I  went out for a fish fry to The Redwood Inn. (I really like fish!)  It is a very popular place and full of much Packer memorabilia.   Their perch is delicious and one gets a ton of food (next day's lunch).   Again, I forgot to take a picture as I had to dig right in!
Saturday I had so much ambition!  I was doing my usual laundry, when I started to clean the basement.  You can now see my craft table!  I also baked a cherry pie.  It boiled all over the oven, and no, I don't have a self cleaning stove!  My hubby cleaned the awful mess for me.
Yesterday was just a day of rest for me.  I nice little visit with my bff, and caught up on some sleep!
This week will be very busy, so I better remember to take pictures!