About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Tuesday, January 20, 2015

A Busy Pain Free Weekend!

One of my lovely blog friends contacted me about my Interstitial Cystitis.  She had very good advice for me and it is so wonderful to have someone who understands.  Her name is Laurie from I Love a Cloudy Day.  She is my new hero.  She has been through a lot worse than me, but her advice is good for me anyway.  NO CAFFEINE!  No chocolate, no spicy foods.
 
 
 
Now, as I told my doctor, caffeine is my "crack."  I could never imagine living without my caffeinated coffee and my Diet Pepsi, but by the grace of God, I can and will do it!  That is my first step; that, and drinking more water!
 
Another thing I will try is Javacid.   It is a product that neutralizes the acid in coffee.  Some even use it on their salsa!  It recommended for those with stomach and digestive sensitivities, ulcers and Gerd, but people with IC have found it works for them!  I had some samples, and had a couple of cups of the "real" coffee with the Javacid added.  I didn't have any problems. 
 
So far, since giving up the caffeine, I have not had to take any pain meds!
 
I have another new friend who is a consultant for Close to My Heart, a stamping company.  She has taught me how to use my Cricut (a printing and cutting machine)  and has helped me in organizing my craft area.
 
These magnetic sheets are holding my die cuts for my Big Shot (another thing that helps to cut shapes and emboss)

My stamp sets are all organized here.  I have to label the dividers yet by category.
If need be, I can clear another shelf!  It is so nice to see my stamps!
 
Saturday night hubby took me out to dinner.  On the suggestion of a FB friend, we drove up north to Algoma to dine at Skaliwags.  Great food, but very unorthodox!  First, we entered this dive bar (and I mean dive).  We ordered our drinks, the menu was on a blackboard (no prices...hmmmm).  When a table was ready for us, the hostess took us outside (that's right), through an alley to the backdoor of another building.  We passed through a rather crummy entryway, past the kitchen, and into a nice dining room.  Now, some people would never get past the dive bar!
 
The food was gourmet, but I thought rather expensive considering the facility.  No soup or salad, just the entrée.  My husband had steak and I had these yummy scallops, topping a mound of garlic mashed potatoes, sweet mashed potatoes and grits (which tasted like the potatoes to me).  The food was beautifully presented.
 
 
When we got the bill, we realized that of my husband's Old Fashions cost $6 each and of my Sundrop sodas cost $3  each which I think is rather high for a glass of soda.  I don't know if we will return or not.  The menu is heavy on seafood and not much in steaks.  (My husband is a steak eater.)  The evening was way too expensive for us.  One hates to ask how much something is, and then say, "never mind."  Still, I would say if you are near Hwy 42 in Wisconsin, to try it out for yourself.
 



4 comments:

Linda said...

Pain free is fantastic, isn't it? I am glad that you are finding what works for you. I stopped drinking soda quite a long time ago...well, I do have a soda occasionally but I don't keep them in the house so I only have one when I go out which isn't often. I prefer tea to coffee and never have more than a few cups a day, and only in the morning. (that is the caffeinated ones). I love a cup of herbal tea in the evening after supper (mint, chamomile, or ginger with a little honey). I cannot stand spicy or hot foods so thankfully I don't eat them. Another thing that is not good at all are cold cuts...bologna, salami, capicolli, pepperoni...very bad.

Linda said...

I am glad that your craft area is getting so organized and that quitting the caffeine is working for you!!!

The Polka Dot Closet said...

That restaurant sounds like you can chalk it up to an "Interesting experience if nothing else lol. And thank you for the tip on Javacid...I have Gerd and drink very little coffee because of it....I am so going to try it!

Carol

White Lace and Promises said...

I have a friend who has IC. She had the surgery that was fairly new 20 years ago where they went into her colon and made a pouch to reroute her urine. It has been a nightmare. She has been ridden for at least 15 years now. Her daughter 47 years old died of cancer this year and we reconnected. She is totally alone. Her husband is wonderful but he works. She stays there day after day alone. I try to talk to her several times a week and see her once aweek. Since my grandbaby came and the holidays today is the first day I've seen her since Thanksgiving. She had a colon blockage when her daughter was dying and she almost died herself. I wish I could her on here to connect with you. She's not computer savy and I've spent hours teaching her the little I know but the pain takes over and she can't even concentrate. We will pray for you and you pray for her. I don't know anybody with this.