About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Tuesday, January 27, 2015

Life Goes On, Pain or No Pain

I had not taken a "bladder pill" for a week.  Oh, at times, I would get a twinge, but I let it pass.
I am praying for grace to live with this condition and all my meds, but I am impatient, especially when it was under control for such a long time!
I did take a pill last Tuesday as I was having a Stamping Party.  We made this card and little bag:

I like the big scrolled heart that pops out!
My Javacid  (see previous post)  seems to be helping.  I limit myself to two cups of caffeine a day while using that and have cut down on the decaf considerably.  I have also increased my water consumption.
Still, I am not quite up to par.  I am afraid to make love to my husband and we are lovers, not fighters!  He is so sweet and understanding.  
I am now getting monster headaches.  Yesterday I had a migraine all day and nothing helped, so I went to bed at 7pm!  Now I am awake at 4am.
Saturday we went to my hubby's oldest sister's house.  It is quite a drive, but we hadn't had any snow yet, so not a problem.  I brought a big bag of Tee-shirts that I had been saving for over 25 years!  They are all Dan's, our son.  I have been meaning to have a memory quilt made for him all these years.  Not done for graduation from high school or college and this summer he will be 30!
Jim's sister is retired and is quite an accomplished quilter, so she is making it for the cost of the materials!
Yesterday she messaged me that she decided to change the layout and needed more tee-shirts (she didn't think that she needed all of them on Saturday so took the rest of them home to be thrifted).
So, I had to choose more and box and mail them!
Today I go see the nephrologist (my kidney doctor).  He will not be happy about the new pill.  He never is and will tell me to drink more water!
I am hoping to hear from my Pastor.  He is going to see my bff, Linda, on Wednesday after her surgery.  I hope to ride with him if he doesn't have anywhere else to go.  Otherwise, will pray at home like everyone else.
Speaking of prayer....I have taken over the prayer chain at church.  It helps me to me more diligent
in my own prayers.  I have it all quite organized now, so I am happy with it.


Linda said...

Yes, life does go on...no matter what kind of pain we may be dealing with. Glad you've cut down on the caffeine.


Nice card!! Maybe you had a caffine mirgrain...my hubby gets them when he cuts down/out on his coffee.

~Lavender Dreamer~ said...

You poor thing....I am keeping you in my prayers sweet friend. You sure have to put up with a lot of pain and I'm so sorry. Take care of yourself this week. Sweet hugs, Diane

Linda said...

Continuing prayers for you, dear. I love the card and bag, they are lovely.

Sandy said...

I am trying to cut down on caffeine. Right now my coffee is half and half.(grind myself)
I feel so guilty about not being able to go to hospital for my sister. Harder to do than expected.
LOVE your cards.(crafts)