About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Monday, January 12, 2015

Why I Have Been MIA

This week we were all just trying to stay warm!  It has been below zero temps this week.  Yesterday, it felt "balmy."  I think it was in the teens.  I hate it when it is so cold that you can't feel your face!
 
I didn't want to go out, to the Red Hat meeting, but my son said, "Mom, it's going to be cold in Wisconsin for the next three months!  You HAVE to go out!"  So, I did, and we all had a good time!
 
I have been suffering off and on from Interstitial Cystitis since before New Year's.  It is also known as bladder pain syndrome and is a problem that causes pain in the bladder or pelvis.  It also causes an urgent and frequent need to urinate.  When I go, my bladder starts to spasm.  I am on medication for this disease, but apparently it's not enough.  In the past the spasms were so bad that I would urinate and pass blood clots.  I just get spasms and have a difficult time urinating.  I take another pill, a stronger version of Pyridium (the stuff that makes your pee orange).  This pill also contains pain medication in it and causes my pee to turn into a lovely blue-green color!  It helps, but I doubt that the doctor wants me to take these all the time.  I also drink a lot of water and sit on a heating pad.
 
Today I go see the urologist.  I am afraid that he is going to want to do a procedure.  One is a cystoscopy and that is done under anesthesia.  The doctor inserts a lighted tube, fills the bladder with gas to get a better look, and takes a cell smear.  The other procedure is bladder instillation where the doctor inserts a catheter and "washes" the bladder with a medication which has to be held in there for 15 minutes.  They do this over a series of weeks!  All I know, is I have to get this under control!
 
Lately I have made contact with old high school alum on Facebook.  It is rather interesting to see where life took them!
 
My project/day went by the wayside, but I have been feeling a bit more ambitious on my good days.
I have been cooking more and cleaning more and becoming a regular Suzie Homemaker!  Yesterday I cooked up a big kettle of hamburger vegetable soup!  (I forgot to take a picture).  I realize I cook like my mom with a little bit of this, and a little bit of that!
 
I have a friend who loves to organize.  She is helping me to organize my craft area so I will be able to find everything, and like being down there.  We got a good start and now I can find all my stamp sets and card kits!  When it is done, I will take a photo.
 
I am still going to volunteer for The Salvation Army in their office and also once a month at The Senior Center.  I have also taken charge of the prayer chain at church!
 
 



5 comments:

Gert said...

Wow! You are on the road once again to a busy life!Yeah! I know how diseases can slow one down and a person can easily hibernate! LOL Your procedure sounds quite intensive, my prayers are with you.

Blessings,
Gert

Linda said...

Neither one of those procedures sound like much fun....good luck! It is a great feeling to get things organized! Some day I will too. Keep it up.

Linda said...

Sounds like you are doing some really good things. So sorry about your health, I will keep you in my prayers.

Carolee said...

When your friend has your room organized send her over. My room is in dire need!
Hope you are able to get your bladder under control.

Laurie M said...

oh my, I know all about cyctosope and instills, although here they do to put you asleep, I hope for sure you improve soon,