About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Tuesday, March 3, 2015

Almost Normal!

It's been a while.  I have been struggling with my IC, also known as painful bladder syndrome, and figuring out what to take, what to eliminate, etc.
 
I have been taking Marshmallow Root.  I bet you didn't know marshmallows grow like a plant, did you?  Well, the miniature marshmallows are the seeds!  Seriously, this is something I take to help coat my bladder with mucous.  Sounds gross, but if it helps...
 
I am still using my Javacid in my coffee.  I am down to two cups per day, oh, sometimes three, but the Javacid is a must to help reduce the acid in the coffee.
 
I am using Prelief to ward off any problems with acidic foods.  I am not sure if this works.
 
Off of my list of foods are anything with tomato base, my fruit juices (except pear which I might have to go to a health food store to find) and of course, SODA!  I can expect to pay the piper if I drink any.  I am drinking more and more water and vegetable juice (without tomato) in the morning.
 
Of course, I have my blue (not purple anymore) pills.  They are similar to the others, but much less expensive.  They coat my bladder, numb it and make my pee a beautiful blue green!
 
Yesterday was the first day I didn't have to take one of those!  I ate "clean" foods and didn't experience any problems!  Glory alleluia!
 
A week ago I went to the Wildtree tasting party.  I signed up so I could buy things for myself.  They have many food enhancements (spices) that are low in sodium and sugar and don't have the evil additives!  I got my kit, and amongst the catalogs, etc.  I got a ton of rubs, oils, and spices and mixes!
 
 
Of course, many of mine came in little baggies to be used for tasting parties, but I am not planning on parties.  I am buying for myself, and anyone else who needs something here and there.
I was checking out chicken recipes yesterdays, so Wednesday I am going to use the product for the first time!  Tonight I am going to our Red Hat dinner!
 
Saturday I had a Stampin Up party.  The demonstrator made this card for me:
 
 
We made these two cards:
 
 
Have to share this picture of my great great nephew that my sister sent me:
 
 
I wish I saw him more often, but for some reason, his Mom and Dad never tell me when they are coming to town!  My sister is lucky if they call her in advance!  Oh well, young people.
 
 


3 comments:

Gill - That British Woman said...

he is a cutie isn't he. I am glad you are finally figuring out what you can and cannot eat. I hope all those supplements help as well.

Blue green pee now that's different, but good for St. Patrick's Day!!

NanaDiana said...

That baby is darling. I sure hope you can get the bladder problem under control, Deb. How miserable that must be. I can't imagine!

Love the cards and the one she made for you.

My daughter "sells" those spices, too..she, too, bought just for herself and family. Some of the stuff is VERY good! xo Diana

Linda said...

What a sweet baby! I learned something new about marshmallows today, thanks to you. I love your green Irish decor on your blog. Green is my favourite colour so when I saw this I smiled. Oh, and would tea be easier for you to handle than coffee?