About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Monday, March 16, 2015

Never Again!

We were excited to begin our trip.
Never again!  It was a three day trip to get to our destination hotel.  The first day wasn't bad.  We had a movie in the afternoon, our scheduled stops, etc.  We usually stop every two hours to stretch our legs and have a potty stop.  We stop for lunch (usually fast food) and dinner.
The first night we were on our own for dinner and dropped off at Westport Plaza in Saint Louis, Mo.
When it is a Saturday night and you get a bus load of people who have to get something to eat and be back in an hour, good luck!  Jim and I ended up at  Paul Mineo's Trattoria Italian Restaurant.  It was  upscale but they could seat us and feed us and get us out in an hour!  (Maybe because most of the seniors went looking for something less expensive?)  Well, this ended up being the best meal of the week!  Jim loved his lasagna and I loved my Pasta Mar (clams, shrimp and scallops in a cream sauce).
Saturday's highlight was stopping at Bass Pro Shop "Outdoor World"  In Springfield Mo.  Jim and I didn't expect to like this so much!  They had clothes, shoes, jewelry among all the sporting goods.
Walking through it was like being in the outdoors or at a Zoo.  It was quite awesome!

Monday was my breaking point.  We hit stop and go traffic for over two hours.  We went for four hours without a potty stop.  I was quite uncomfortable and ended up going in the bus restroom (which is discouraged for 40 people for so many days on a bus).  Finally, our director told me to go on the bus.  It is a trick and a half trying to empty my ileostomy bag, going and even pulling up my pants on a moving bus, but I managed to get er done!  It was good to be able to walk too! 
We ate dinner at a cafeteria style place, called Luann's.  That wasn't too bad and was included in the trip.  It was so good to arrive at our destination hotel!
....to be continued.



Gill - That British Woman said...

with a bus trip you can't go at your pace which I think it an issue with most folk.

NanaDiana said...

Mostly good so far- except for the being stuck in traffic.
We went with the kids to that same Bass Pro shop in Springfield, MO. It is something to see!
Looking forward to the rest of your story. xo Diana

Linda said...

The beginning looks good........... I am glad you were able to go on the trip and it all turned out OK. Ya gotta take the good with the bad, unfortunately.

Linda said...

I love your photos here.

Gert said...

We went to The Bass Pro Shops a couple times! I love them!