About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Friday, February 20, 2015


I'm hibernating!  It's warmer today.....5°
Nothing new here.  I have been trying to follow a low acid diet.  I'm doing better and if I slip a bit, my body let's me know it.
How are you staying warm? 
Of course, I have to venture out and take my son to work.  I also have to go clothes shopping with my husband who shops once a year.  (How can men do that?)
Sunday I am going to a "Tasting" Party for Wildtree Products.  If you haven't heard of them, I am thinking of becoming a representative.  Wildtree will teach me how to cook with Olive Oils, seasonings, etc. and nothing has additives, preservatives and are low sodium!  I have to eat healthier and decrease our family's dependence on pre-packaged foods.  If I am going to use the products, first I have to see if I like them.  Then, I may as well buy them from me!

Monday, February 16, 2015

Busy Holiday Weekend!

Valentine's Day is not that special to us.  (Isn't every day Valentine's Day?)
I gave my sister the Valentine that I had made previously at one of my parties!
I found some pretty Valentine cards at the thrift store:  One for Husband and one for Son!
I also tweaked this card for my husband.
Jim came home from work and stopped at the grocery store.  He bought me flowers, and some groceries!  He said they didn't have any cards.  I think he should have asked someone.  Oh well, not a biggy, but I did have to tease him.  We have been married almost 35 years.  I know he loves me!
Saturday I went to a friend's golden wedding anniversary.  Jim stayed home as originally I thought that there weren't going to be any men that he would know there.  Our best friends went....husband and wife!
This is the card I made for Carolee and Jon.  (wish you could see the glitter)
Carolee, bff, Linda and myself!  Great selfie, Carolee!
I don't use a camera anymore, just my phone.  I love it!
Sunday morning I was so tired.  I just felt so run down!  I skipped church and went back to bed.
In the afternoon I picked up Linda and her grandson to go play Bingo at our church.  This was a new activity for our church, but the Ladies wanted to plan something fun to break up this winter.  The prizes were deserts.  I won black-out and chose a German Chocolate Pie, as I figured hubby would like that the best!  Jalen  (Linda's grandson and my Godson) won many deserts as well, plus we gave him some cupcakes that we had won to share with his family!  He had fun!  We all did.
My bladder had started to act up in the afternoon.  I ate the wrong foods that day.  OJ in the morning and leftover  lasagna at noon.  Both are too acidic for me, so took one of my pills and opted to sit on a pillow while playing Bingo!
The Ladies served Sloppy Joes, Potato  Salad - hot and cold, chips, pickles and more deserts!
Of course these are all the wrong foods for both Linda and I!  I had seconds on the cold potato salad, but should have skipped the Sloppy Joe.  Well, I had already taken my pill, so I was okay but I have to watch what I eat this week!

Thursday, February 12, 2015

Overcoming Suffering

I had four good days without pain.  I guess I should not take the good days for granted.
Last night I had a terrible flare of my Interstitial Cystitis
I have been watching what I eat and drink, staying away from caffeine and high acid foods and beverages, but sometimes flares happen.  It has something to do with the pelvic wall. 
Mine is probably screwed up from my anatomy being changed when I had my surgery to remove my rectum and colon.  It also may be because of the tons of scar tissue that has grown within.  When
my gynecologist had to remove a fallopian tube because of a cyst, he said my it was a jungle in there with the adhesions!  Stress also plays a role.  I get stressed easily.  That could have been from stress
worrying about needing  periodontal grafting, or maybe from my best friend having cancer?  Maybe it is a combination of everything, the perfect storm, so to speak.
I saw my family practice doctor.  I needed to vent about this stupid disorder.  I also needed a referral for physical therapy for pelvic pain disorder.  She gave me the referral and suggested I increase my antidepressant as going through this chronic pain is very depressing.
No kidding!
So, getting back to last night.  I began having spasms in my urethra around 9pm as I was getting ready for bed. I took one of the pain meds for this specific problem.  I also took my heating pad to bed with me, writhing in pain and crying while my husband snored.  I went on the computer looking for distraction, but that didn't help.  I couldn't concentrate or pray.  In desperation, I took a tranquilizer so I would fall asleep.
I was so depressed this morning.  I cried a lot.  I felt sorry for myself.  I even thought I would rather die of the kidney disease than have to live with this pain, but then, I got over it and  on with life.
I did some retail therapy at Goodwill.  I bought a cute black and white fleece top and a black scarf.  I also found some cool epoxy stickers, precut card stock and envelopes.  I felt better.
I was feeling a little dopey all day though.  The pain pills do that to a person.
I watched Grey's Anatomy; the theme being why does God allow bad things to happen
to people who love Him?   Some were allowed a miracle, some not.  But in the end, He promises
to be with us.

Sunday, February 8, 2015

Yesterday was a GREAT DAY!

Yesterday was such a great day!  I was still feeling good from my medication and I am watching what I eat and drink.  Friday night when my "boys" had chili, I had a fish lunch.  (Tomato based and spicy foods are not good for me.)
In the morning, I connected with a person on a Facebook group for scrapbooking.  She is a Close to My Heart Consultant, but doesn't really sell.  She likes to scrapbook and organize scraps for her group to get together.  My friend and I will probably join in even though it is 45 minutes away.  That's not that long of a drive!
I went to my Cricut class.  At first I was apprehensive as there were quite a few women there and it was crowded and supplies were limited, but they all made room and shared.  The instructor who is also a  Close to My Heart Consultant and my friend,  was SO  helpful!
These are the cards she made, but mine are just like them except my scenery one is not colored yet.

I was so amazed and excited when I saw I saw how I could use my Cricut to create these cards!  I have had the machine for two years and was afraid to use it!
I didn't color because I had to rush home so hubby and I could go to my favorite store in Green Bay, Christopher & Banks.  They were holding a basic navy 3/4 sleeve tee in my size as it was the last one and I couldn't get it online.  I picked up a few more things.  After all, I had my C&B charge card and then you got 35% off and the stuff that was already on sale went on my gift card.
We had to try out the new Firehouse Subs in Green Bay.
I got the Hero Sub. It was not low calorie but it was good!  Yes, their subs do have more meat on them!  They do have low cal subs and salads for those who want to go that route.  I am learning to go without Pepsi and diet sodas.  I don't have soda very often because of that.
It's a good thing, Martha Stewart would say!

Friday, February 6, 2015

Why I am Invisible

  Although I love reading other's posts, and enjoy the blog friendships I have made on here, forgive me if you don't see me in blog land too often.
I don't have an exciting life.  I do laundry, I do data entry for the Salvation Army, work the desk for the Senior Center and am sick or in pain most of the time.  Not a lot to write about!
Oh I am looking forward to my trip to San Antonio and I have a plan.  I am bringing my pain pills, my heating pad, and I am going to avoid all caffeine and acidic foods.  I am also going to wear light knits as they are more comfortable for me when I have a sore bottom.
I am going to continue to make cards and scrapbook.  Hopefully I will go on some little overnight trips.  That is all.  Most of the time, I forget to take pictures. 
Tomorrow I am going to a class to better learn how to use my Cricut (a cutting tool for card making and scrapbooking).
I leave you with a few thoughts: