About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Saturday, January 9, 2016

Back to My Life!

Before Christmas I participated in a RAK.  I sent off two packages, and someone sent this to me.  How generous of them!  I haven't even begun to put everything away.
My craft area is a disaster, and I have the goal of getting it organized once and for all this year, however, I had a slight delay.
Hubby had vacation before Christmas and got at painting the bathroom.  First, was the arduous task of removing the wallpaper border.  He ended up using straight vinegar.  I don't think he let it soak long enough, as my bff's son didn't have such a hard time removing their wallpaper.  He really let it soak while he worked on another section.  My husband is not known for his patience.
I didn't take a "before" picture.  It was a very light peach with a seashell border.

New curtains and a fresh coat of paint really change the look!
Last weekend I was in the hospital.  I don't know what virus I got, or how I got sick.  All I know is that I got progressively weaker, out of breath and nauseous.  I never threw up or had diarrhea, so that ruled out Norovirus.  Some of the levels in my blood were way off kilter and my blood pressure was very low, so they admitted me.  I was very afraid about my kidney disease as that was a factor and I am sure my nephrologist is going to reprimand me and say that I didn't drink enough fluids.  It is really difficult when you feel weak and nauseous.  It has taken me about a week to recover, but my levels are back to normal, at least what is normal for me.
I also have been dealing with a skin issue on my tummy.  After twenty years of having an ileostomy, I have developed an allergy to the adhesive that holds my bag on!   It gets weepy and then nothing sticks.  When I do find something to hold it on for a while, the rash gets worse.  I have been to the
clinic, the ostomy nurse, the dermatologist, back to the clinic, a different ostomy nurse and now have an appointment with an allergist.  My physician said there must be someone who has dealt with something like this before!  If the allergist can't help, we are going to a larger city for medical services.  I have tried almost every brand of medical appliance out there.  The ostomy companies and their staff are very helpful and aim to please and have sent me many samples!
I am getting my life back together.  I am going to a card class today and then to Star Wars tonight.
Monday, I am going back to yoga class.
Thanks for all your thoughts and prayers!  I truly was afraid.


Linda said...

I bet the bathroom looks nice, a face lift is always good! I'm sure glad they 'fixed you up' in the hospital and that you are feeling better. Hope that darn tummy/skin issue gets taken care of, it must be a real pain. :-(


Father God,
Please heal Deb's rash and help her find the right stuff to make her feel better. Amen
Nice job on the bathroom. Taking down wall paper is WORK!
Hoping this year will bring you better health!

Linda said...

I will keep you in my prayers in reference to your health, Deb. Take care of yourself.

NanaDiana said...

I have been away from blogging, Deb, so did not realize you were so ill. I am so sorry about that! I do hope they can help you find something that will work adhesive wise. That must be a nightmare to deal with that! Hope the rest of your month is smoother than it started out. Hugs to you- xo Diana

White Lace and Promises said...

Oh sweet girl I never knew this. I have a friend who had her bladder removed and colon rerouted for her urine output. She uses a foley cath. She had constant infections at the site and has had those problems. I know what you are talking about. So sorry you've had to be hospitalized. The viruses this year have been horrendous. Hope you are 100% soon. The bath looks great!!!! Love the color! Will never have wallpaper again! I used vinegar too and still had to plaster the wall.

Carolee said...

Sure wish you could get that skin condition taken care of as that, alone, can throw you a loop without your other "bug." Glad that is better and your numbers are "normal" again. The bathroom looks very nice!

Curtains in My Tree said...

Getting a new face lift in the bathroom is always a good thing

Seems like the dr's all these years could have helped you with your skin break down and healed it/you.

So sorry you have all these problems however so glad your a blogger and can play with us through our blogs LOL

Gill - That British Woman said...

I agree with the others the bathroom looks fresh and clean. I hope you are feeling a lot better now?