About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Thursday, January 28, 2016

Updates and Crafting Fun

I am sorry I haven't been blogging for a while.  I have been so busy with doctor visits.
 
Two weeks ago I saw the allergist for my skin issue on my tummy.  Well, it was not an allergy.  He called in the surgeon, who came in with another surgeon.  They conferred and decided I needed a biopsy .....then!  Okay, now I'm getting somewhere, and I wait for the results.
 
A week later:  I find out it is psoriasis and they refer me to a dermatologist.  PLEASE send me to a different dermatologist, one that will actually DO something!
 
This last Monday, I saw the dermatologist.  After realizing we can't use ointment, and I can't take some of the oral medications because of my kidney disease, he agrees with my suggestion.
I had read on my ostomy support group that another person who had this same ailment was treated with prednisone injections around her ostomy site.  That's what he did. 
Cleaning each area with alcohol stung, 5-7 injections stung some more (I lost count).  I was also given a prescription for a prednisone type spray for the area.
 
The next day, I pick up my prescription, change my ostomy appliance, and wa la!  My skin is almost healed!  No more tape, no more blistering or weeping!  Woo hoo!
 
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Before all the Fun Began
 
I received all this stuff from an online friend.  I had sent her a few things she was looking for, and she sent all of this as thanks and also as a get well!
 
 
I went to a one day crop.  I caught up on some scrapbook pages.
 

Red Hat event
Just a page from a previous scrapbook weekend
Our church's kick-off for the Anniversary
Love this Packer paper.  I still have to do some journaling and captioning.


One evening I had a Stampin Up Party.  These are some of the cards we made:


This card had a beautiful corner punch, but I missed and it looked like someone had chewed the corners.
It ended up being a tag.

I ended up earning over $70 dollars worth of free stuff!  I spent $20.  I can't wait to get it all.



 


 



 


2 comments:

Linda said...

The most important thing is our health and taking care of ourselves; blogging is secondary. What a lovely series of gifts from your online friend! I will keep you in my prayers.

Oliva Ohlson said...

So happy to hear your skin is healing! You have been a very busy lady; and your scrapbook pages are great! Do you have your suitcase out yet?