About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Thursday, February 25, 2016

Lemons for Her Tea

I went two days without crying, but have been having horrible headaches.
On Monday, I went with Linda to see her oncologist.  He is very nice, and very agreeable as to our suggestion to go to a cancer center for a second opinion regarding treatment.  We discussed some of the new treatments that they have.  She has been having trouble breathing, so he decided that she should stay overnight in the hospital, get her blood thickened up and have a procedure the next morning where she could get some of the fluid by her lungs removed.  This would make it easier for her to breathe.
Tuesday morning I waited with her for the test.  When I left the hospital, my tummy really hurt and burned.  My psoriasis was worse. As I had to change my appliance, I started to cry.  It was like the last straw.  I cried hard.  I thought I was going to lose it.  I had also received a call that I DIDN'T have a bladder infection, but that it was the Interstitial Cystitis again.  Afraid that my Crohn's would flare up again, and that I would have a nervous breakdown, I called the clinic.
I saw the nurse practitioner and it was agreed that I could continue to wean myself off of the antidepressants, because I wasn't clinically depressed, just sad, and for good reason!  She gave me something for anxiety and for my headaches.  She also gave me a referral to the gastroenterologist, fearing that I had developed a narrowing in my intestine.
My  husband I went for breakfast which was nice, and later I went for a haircut for a pick me up.
My husband was making me laugh.
So, that's me.
Linda is not doing well.  She has very little appetite and is so tired all the time.  All I can do, is pick up some ice cream for her and lemons for her tea.  I love her.  I hurt.  I don't know what to do without her.  She told me I have many more friends, but I don't feel like I do.  I feel so alone in my pain.



I am so sorry...losing a BFF is very hard..I miss my MaryElla all the time!
Cute haircut...
Praying for you and Linda..

Curtains in My Tree said...

So sorry about your best friend forever having to deal this this horrible cancer again.
She needs to have a talk with God and commit herself to him.
prayers for both of you in Jesus name.

Your hair cut is perfect

Carolee said...

Very cute haircut!
I thought I was your friend??? You have more friends than you think. Just take a look around and inventory us.