About Me

My photo
I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Thursday, June 30, 2016

I'm Still Here, but with a New Look!

Hi,  I'm trying this again.
Summer has been uneventful, unless you count doctor and dentist appointments as events!  Because of all of this, I have decided not to volunteer at St Vincent DePaul.  I never know how I'm going to feel!
I have still been experiencing severe abdominal pain.  I decided to go to Froedtert Medical in Milwaukee for a consult as I have been there before for my abdominal surgeries.  The first order of business was an MRI was scheduled.  I got the contrast down, and got through the procedure, but I hope I never have to go through it again.  I think the noise of the machine would be a very good torture device!  Being enclosed did not bother me, as it was like a tanning booth.
The good news is that the MRI did not detect any active Crohn's or anything else.
Next step will be an ileoscopy.  That is like a colonoscopy but they will go through the opening on my tummy.
My psoriasis on my tummy is under control, but is flaring in and around my ears!   Sheese!
All this stress is adding to my urological problems, so my meds were increased to prevent any further flare ups.
Some days I feel like a mess, but it could be worse.  I still have not ridden my bike.  Will today be the day?  It is difficult when I have abdominal pain.
Recently I got my hair cut.  I decided on a new "do."


Last week I took my bff, and my great nephews to Bay Beach Amusement Park.  We met up with my niece and her husband and daughter.  It was a beautiful day, not too hot, and the boys were well behaved!  No crying!

My great niece talked me into some rides.  Here I am on the Sea Dragon (if you look real close).

In the middle. (the front on this pic).  As it swings, you are at a 90° angle looking down and looking up.  I didn't like it.  I closed my eyes.  My great niece kept saying, "It will be okay Auntie Debbie, you'll be fine, open your eyes!"  LOL.  She was such the little mother!
Next ride:  The Bumper Cars.  We had three who did not meet the height retirements, so I was recruited.  It wasn't too bad, unless we got hit really hard.  Hurt at the time, but I was okay after I got off.
That's us front left.


Linda said...

Bay beach was certainly fun!

NanaDiana said...

Just popping in to say Hi, Deb! I am trying to get back into blogging a bit, too. Don't you love Bay Beach for a family outing? You get so much for your money there with the rides--especially compared to the big amusement parks. Glad you had a good time.

Sounds like pretty good medical news so far---fingers crossed that the rest of it is good, too. xo Diana

Sandy said...

I used to take Logan to Bay Beach a lot. We always had so much fun together. I think the bumper cars now would put me into a huge fibro-flare. BTW, your haircut is cute on you. Love it.

Sandies' Patch said...

Welcome back! Looking good too! xxx

Carolee said...

I am anxious to see your new do in person! It is such a nice picture. Looks like you had fun at Bay Beach. I haven't been there since my last school picnic. Best wishes on your next test.

Linda said...

Your great niece sounds like a gem, Deb! I really like your hair! Seeing your last photo brings back some wonderful childhood memories for me. Thank you so much for sharing!

The Polka Dot Closet said...

So sorry you are continuing to have health problems....you don't have time for that! You are braver that me going on those rides, good for you! Thank you for your kind words on the Polka Dot Flea, I wwould love for you to come one year, how fun would that be!


~Lavender Dreamer~ said...

I sure hope you can figure out what's causing the pain my friend. Have a wonderful summer! Looks like you are having some fun in the pics! Hugs, Diane

Oliva Ohlson said...

Hi Deb! So happy that you are posting again. I'm always thinking of you. You're a very positive and brave person. You deal with all your health issues, and doesn't let you stop you from enjoying life! Hugs!!!