About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Thursday, January 28, 2016

Updates and Crafting Fun

I am sorry I haven't been blogging for a while.  I have been so busy with doctor visits.
 
Two weeks ago I saw the allergist for my skin issue on my tummy.  Well, it was not an allergy.  He called in the surgeon, who came in with another surgeon.  They conferred and decided I needed a biopsy .....then!  Okay, now I'm getting somewhere, and I wait for the results.
 
A week later:  I find out it is psoriasis and they refer me to a dermatologist.  PLEASE send me to a different dermatologist, one that will actually DO something!
 
This last Monday, I saw the dermatologist.  After realizing we can't use ointment, and I can't take some of the oral medications because of my kidney disease, he agrees with my suggestion.
I had read on my ostomy support group that another person who had this same ailment was treated with prednisone injections around her ostomy site.  That's what he did. 
Cleaning each area with alcohol stung, 5-7 injections stung some more (I lost count).  I was also given a prescription for a prednisone type spray for the area.
 
The next day, I pick up my prescription, change my ostomy appliance, and wa la!  My skin is almost healed!  No more tape, no more blistering or weeping!  Woo hoo!
 
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Before all the Fun Began
 
I received all this stuff from an online friend.  I had sent her a few things she was looking for, and she sent all of this as thanks and also as a get well!
 
 
I went to a one day crop.  I caught up on some scrapbook pages.
 

Red Hat event
Just a page from a previous scrapbook weekend
Our church's kick-off for the Anniversary
Love this Packer paper.  I still have to do some journaling and captioning.


One evening I had a Stampin Up Party.  These are some of the cards we made:


This card had a beautiful corner punch, but I missed and it looked like someone had chewed the corners.
It ended up being a tag.

I ended up earning over $70 dollars worth of free stuff!  I spent $20.  I can't wait to get it all.



 


 



 


Sunday, January 17, 2016

Correction

It would be more accurate to say I have a skin condition, that a "rash."  I just don't know what to call it since I haven't gotten the results of my biopsy yet.
 
My skin burns more than it itches.  It is quite raw.  It is very annoying.
 


Saturday, January 16, 2016

Moving Forward at a Turtle's Pace

I went to the doctor for my hospital follow up.  She was quite thorough, and displeased that this "rash" on my tummy has gone on so long.  She sent me to an allergist.  He was really nice, but said it is not an allergic reaction.  Fungus?  An infection?  So, he called in the surgeon who came in with some other surgeons and they looked at my fat belly!  They discussed it and decided I needed a surgical biopsy, so that is what I had Wednesday.  I should know sometime next week what the results are and be able to move on from there.  (I still don't know why the dermatologist didn't do one).  My tummy continues to burn and itch.  Yesterday it was quite red, so  rested with a small ice back on it.  Brrrr...as if it is not cold enough here, but it did help.
 
Last week I went to a card class and made this valentine.  It is an easel card and so easy to make.
 
 
Today I am going to an all day crop and hope to catch up on some of my scrapbooking!
Another blogger mentioned her messy craft room.  Get a load of this!
so does the pool table
the floor catches all.
Craft table, what craft table?
 
I took pictures for my "Before" and am putting it in a book with my goals to organize it.  So far I have organized my solid 12x12 paper.  I have a far way to go!
 
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Oh, oh!  I had some blood work done and my levels are back to "normal" for me.  I still have stage IV kidney disease, but it is manageable!
 
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They have been praying for me at church.  The other night I missed our anniversary committee meeting.  Apparently the pastor was VERY complimentary of the work I have done, and how I am using my gifts to do the posters and scrapbook.  Of course, if I had been there, I don't think he would have said anything!
 




Saturday, January 9, 2016

Back to My Life!




Before Christmas I participated in a RAK.  I sent off two packages, and someone sent this to me.  How generous of them!  I haven't even begun to put everything away.
 
My craft area is a disaster, and I have the goal of getting it organized once and for all this year, however, I had a slight delay.
 
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Hubby had vacation before Christmas and got at painting the bathroom.  First, was the arduous task of removing the wallpaper border.  He ended up using straight vinegar.  I don't think he let it soak long enough, as my bff's son didn't have such a hard time removing their wallpaper.  He really let it soak while he worked on another section.  My husband is not known for his patience.
 
 
I didn't take a "before" picture.  It was a very light peach with a seashell border.
 


 
New curtains and a fresh coat of paint really change the look!
 
 
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Last weekend I was in the hospital.  I don't know what virus I got, or how I got sick.  All I know is that I got progressively weaker, out of breath and nauseous.  I never threw up or had diarrhea, so that ruled out Norovirus.  Some of the levels in my blood were way off kilter and my blood pressure was very low, so they admitted me.  I was very afraid about my kidney disease as that was a factor and I am sure my nephrologist is going to reprimand me and say that I didn't drink enough fluids.  It is really difficult when you feel weak and nauseous.  It has taken me about a week to recover, but my levels are back to normal, at least what is normal for me.
 
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I also have been dealing with a skin issue on my tummy.  After twenty years of having an ileostomy, I have developed an allergy to the adhesive that holds my bag on!   It gets weepy and then nothing sticks.  When I do find something to hold it on for a while, the rash gets worse.  I have been to the
clinic, the ostomy nurse, the dermatologist, back to the clinic, a different ostomy nurse and now have an appointment with an allergist.  My physician said there must be someone who has dealt with something like this before!  If the allergist can't help, we are going to a larger city for medical services.  I have tried almost every brand of medical appliance out there.  The ostomy companies and their staff are very helpful and aim to please and have sent me many samples!
 
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I am getting my life back together.  I am going to a card class today and then to Star Wars tonight.
Monday, I am going back to yoga class.
 
Thanks for all your thoughts and prayers!  I truly was afraid.


Thursday, January 7, 2016

Now a brief announcement

I have been ill and will post when able.
 
Blessings!
Deb