About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Thursday, June 30, 2016

I'm Still Here, but with a New Look!

Hi,  I'm trying this again.
 
Summer has been uneventful, unless you count doctor and dentist appointments as events!  Because of all of this, I have decided not to volunteer at St Vincent DePaul.  I never know how I'm going to feel!
 
I have still been experiencing severe abdominal pain.  I decided to go to Froedtert Medical in Milwaukee for a consult as I have been there before for my abdominal surgeries.  The first order of business was an MRI was scheduled.  I got the contrast down, and got through the procedure, but I hope I never have to go through it again.  I think the noise of the machine would be a very good torture device!  Being enclosed did not bother me, as it was like a tanning booth.
 
The good news is that the MRI did not detect any active Crohn's or anything else.
 
Next step will be an ileoscopy.  That is like a colonoscopy but they will go through the opening on my tummy.
 
My psoriasis on my tummy is under control, but is flaring in and around my ears!   Sheese!
 
All this stress is adding to my urological problems, so my meds were increased to prevent any further flare ups.
 
Some days I feel like a mess, but it could be worse.  I still have not ridden my bike.  Will today be the day?  It is difficult when I have abdominal pain.
 
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Recently I got my hair cut.  I decided on a new "do."
 

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Last week I took my bff, and my great nephews to Bay Beach Amusement Park.  We met up with my niece and her husband and daughter.  It was a beautiful day, not too hot, and the boys were well behaved!  No crying!

My great niece talked me into some rides.  Here I am on the Sea Dragon (if you look real close).

 
In the middle. (the front on this pic).  As it swings, you are at a 90° angle looking down and looking up.  I didn't like it.  I closed my eyes.  My great niece kept saying, "It will be okay Auntie Debbie, you'll be fine, open your eyes!"  LOL.  She was such the little mother!
 
Next ride:  The Bumper Cars.  We had three who did not meet the height retirements, so I was recruited.  It wasn't too bad, unless we got hit really hard.  Hurt at the time, but I was okay after I got off.
 
 
That's us front left.
 


Friday, June 10, 2016

A Little Update

I have been experiencing horrible abdominal pain for over a month.  It has become more and more frequent, and more severe.  I went to the doctor at Froedtert Medical Center in Milwaukee on Monday.  He has scheduled a MRI and some type of scope for me for the 24th....the soonest I can get in.
 
I had three good days after he examined me and I thank God for that!  So far I feel okay this morning, but it is only 5:25am.  I took half of a pain pill last night and slept like a baby!
 
I bought a new used bike but haven't been able to ride it yet because either of the pain or weather.
 
 
 
It doesn't have hand brakes or speeds, but it has baskets and fatter tires.  It is just they kind of bike I can ride to Bible study at church!
 
Pleas say some prayers for me, and have a blessed week!
 
 
Deb...who got a new "do."  It's not that blonde, but it must be the lighting!