About Me

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I have spent a great deal of my life battling illness. I suffered from Crohn's Disease and eventually had abdominal surgery, thwarting the Crohn's and budding cancer cells. Since my surgery in 1995 I have been relatively free from Crohns', although I had several subsequent surgeries related to my ileostomy..When my disease was in remission, I don't think my husband realized how bad it could get, but he has stood by me. I also have suffered from various autoimmune disorders and am diagnosed with Stage IV Kidney Disease. Fortunately, I am maintaining and do not need dialysis at this point. We adopted our son and later found out he had cerebral palsy, so he became my career. Dan has had two surgeries and tons of therapy and is able to walk because of it. He is a college graduate and is employed as an Information Specialist. We are very proud of his accomplishements. I am now part of the retired generation and still getting used to the idea. I do enjoy crafting, traveling and being with family and friends. I am active in my church and feel that the hardships we endure are there to build our faith. I like to live life in the "now" as we never know how much time is left.

Saturday, July 16, 2016

July is Festival Month!

July is zipping by!
I was still struggling with my abdominal pain, then my psoriasis spread to my ears and also my neck and face.  It itches and there are huge flakes!  Many people gave me advice and I found that using T-gel shampoo (for severe dandruff) to wash the areas, and my clobetesol (prescription) ointment on my neck and ears helped.  I just left my face alone, and put Aquaphor on the dry areas.  Ta da!  So happy these suggestions worked!
Went to 4th on the Shore.  Bands, food and beer!  You can see the Badger Car ferry on the shore of Lake Michigan!

Last weekend was Subfest in Manitowoc.  Manitowoc is the home of the Maritime Museum, hosting our very own submarine, the USS Cobia.  During WWII, 22 subs were built in Manitowoc. 

The city has combined things from the past; vendors, music, magic, fireworks, all the things that work for a great festival!
They have painted the Cobia black this year.

We enjoyed the lighted boat show on the river, and then the fireworks!


 Last Wednesday I had my final test at Froedtert Medical Center for my abdominal pain. Previously
 I had  an MRI which showed a healthy bowel with no active Crohn's.  Wednesday I had an ileoscopy which is like a colonoscopy but they go through the opening on my tummy.  No Golytely!  I just had to go on clear liquids on Tuesday!  (Insert smile).  I had sedation, which made me very sleepy all day long and a little nauseous, but my husband rewarded me with lunch at the Waterstreet Brewery!  Yum!
The results of my ileoscopy again, showed a healthy bowel.  So, what is causing the pain?  Apparently I internalize all of my stress (SURPRIZE!)  This causes electrical impulses to travel to the nerves, and hence, I get Crohn's, psoriasis, intestinal pain, and interstitial cystitis!  Lucky me, but it could be worse, so I will deal with reducing my stress through prayer, meditation, exercise and yoga.  Wish me luck!